We got the call last week that the folks in Little Rock have NOT forgotten about us. Damn. So the story is that the protocol for Austin's study has changed again. The short of it is that Austin is the only subject that qualifies for a food challenge at this time. This is great news- his blood score was low enough to risk the challenge- and he's the only one! He's very important statistically to this phase of the study. The bad news is that a food challenge requires a Monday and Tuesday visit. We'll have to fly in on Sunday, fly home on Tuesday. Little Rock is NOT a destination- so flights require connections and extra fees and are not convenient... a headache.
If Austin PASSES the June food challenge, that's great news! Except that we'll have to return to LR in about 30 days (30 days of Oz receiving zero peanut) for another food challenge. UGH... BUT, if he passes the 2nd food challenge, he's considered 'done' and allergy free! (still requires follow up visits every 6 months or so).
If Austin FAILS the June food challenge, we go in the next day (Tuesday), and get him updosed. Then we return 2 or 3 more times in 2 month intervals for updosing. (again with follow up visits every 6 months or so)
We're trying to get transferred over to Duke for the duration of this study. Flights on Southwest go from Tampa to Durham multiple times a day, some non-stop, and all cheaper than Little Rock. This next June food challenge will probably be in Little Rock, tho.
It's all very confusing, I know. I have no idea why I explained it all out here. Too much info. Just frustrated. We're wondering when we are no longer willing to continue. Thought I'd try to get you all on the same page. I'll post more when we book our trip.
Oh, and here's a sidebar. We have a very strong feeling that Oz will fail this food challenge. There are times now- on his 13 m&m dose, that he gets itchy. We highly doubt that pushing fistfuls of nuts down his throat will be non-eventful. However, they NEED this info.. so we will probably cooperate.